Welfare Schemes for Vulnerable Sections of the Population by the Centre and States



Recently, the Delhi High Courthas ordered the Ministry of Health and Family Welfareto explore Crowdfundingto help two children, who are suffering from a Rare Diseaseknown as Duchenne Muscular Dystrophy.

 Constitutional Provision Involved:

The HC held that ‘Right to Health and Healthcare’is a fundamental rightwhich has been recognised by the Supreme Court to be a part of the ‘Right to life’under Article 21of the Constitution.

Direction to the Society and Authorities:

  • The High Courtdirected the society in general and authorities in particularto ensure that the life of such children is not compromised,even if there is a small window of improving their chances of survival or evenproviding a better quality of life.
  • Directed the Ministry of Health and Family Welfareto give a specific timeline in respect of the finalisation and notification of the Draft HealthPolicy for Rare Diseases, 2020. The draft policy has a section where the government proposed crowdfunding for treatment of high-cost Rare

Diseases CrowdFunding


  • Crowdfunding is a method of raising capital through the collective effort of a large number of individual investors.
  • This approach taps into the collective efforts of a large pool of individuals, primarily online via social media and crowdfunding platforms and leverages their networks for greater reach and exposure.


Donation-Based Crowdfunding:

  • Donation-based crowdfunding is a way to source money for a project by asking a large number of contributors toindividually donate a small amount to it.
  • In return, the backers may receive token rewards that increase in prestige as the size of the donation increases.
  • For the smallest sums, however, the funder may receive nothing at all.

Rewards-Based Crowdfunding:

  • Rewards-based crowdfunding involves individuals contributing to a business in exchange for a “reward,”typically a form of the product or service which company offers.
  • Even though this method offers backers a reward, it’s still generally considered a subset of donation-based crowdfunding since there is no financial or equity return.

Equity-Based Crowdfunding:

  • Unlike the donation-based and rewards-based methods, equity-based crowdfunding allows contributors to becomepart-owners of the company by trading capital for equity shares.
  • As equity owners, the contributors receive a financial return on their investment and ultimately receive a share of the profits in the form of a dividend or distribution.


  1. Reach – By using a crowdfunding platform, one has access to thousands of accredited investorswho can see, interact with, and share the fundraisingcampaign.
  2. Presentation – By creating a crowdfunding campaign, one goes through the invaluable process of looking at the business from the top level—itshistory, traction, offerings, addressable market, value proposition, with digestiblepackages.
  3. PR & Marketing – From launch to close, one can share and promote the campaignthrough social media, email newsletters, and other online marketingtactics.
  4. Validation of Concept – Presenting the concept or business to the masses affords an excellent opportunity to validate and refine offering.
  5. Efficiency – One of the best things about online crowdfunding is its ability to centralize and streamline fundraising efforts.



It is a genetic disordercharacterized by progressive muscle degeneration and weaknessdue to the alterations of a protein called dystrophin that helpskeep muscle cells intact.


  • Muscle weakness
  • Enlargement of the calves
  • A waddling gait
  • Lumbar lordosis (an inward curve of the spine)



About sree nivas

Check Also


The country has 18 percent of the world’s population, but only 4 percent of its …

Leave a Reply

Your email address will not be published. Required fields are marked *

Get Free Updates to Crack the Exam!
Subscribe to our Newsletter for free daily updates